Patient Registries

An introductory video about

What is a

Have you heard of a

Why enroll in the GBS|CIDP

This webinar introduces

Daniel Auclair, PhD, Multiple Myeloma Research Foundation, Norwalk, CT, emphasizes the need to modernize medicine through ...

Recently, we talked with Vanessa Rangel Miller of Invitae about the transition of PatientCrossroads to Altavoice to now being part ...

Jean-Jacques Kiladjian, MD, PhD from Saint-Louis Hospital & Paris Diderot University, Paris, France discusses the impact of ...

Patient advocate and CATS Foundation co-founder Daniel Lewi shares his insights on the importance of a

Eric Rice of

Parexel's Leanne Larson, Corporate VP and WW Head, Real-world Evidence speaks with Deborah Collyar, cancer survivor and ...

Learn what to expect when you arrive at Doylestown Hospital for outpatient services or surgery.

In rare disease research,

This eight-minute video includes interviews with health care providers who use disease

This demonstration shows how EncounterSuite by Medical Net Systems utilizes a

What impact does Get With The Guidelines have on hospitals and

RDI Member-led Discussion hosted by the NCBRS Worldwide Foundation. Knowledge-sharing and exchange to empower

What are medical device

Today's episode features Sophia Zilber. Sophia has multiple roles in the rare disease community including caregiver, employee, ...

Listen to Patricia Lewi, co-founder of the Cure and Action for Tay Sachs (CATS) Foundation and mother of a daughter who lived ...