Starting A Patient Registry

Have you heard of a

RDI Member-led Discussion hosted by the NCBRS Worldwide Foundation. Knowledge-sharing and exchange to empower

An introductory video about

This webinar introduces

Why and how a small charity in the UK began an international

... partner in

Why enroll in the GBS|CIDP

... as online medical databases and

What is a

Dr Kiladjian gives the example of Dr Martin Griesshammer, MD, PhD who presented data from a

...

This demonstration shows how EncounterSuite by Medical Net Systems utilizes a

A link to Sophia Zilber's

Currently there is no guidance on how to create a

This is one of fifteen videos recorded by the Fibrous Dysplasia Foundation at the 2014

This guide shows AKU patients how to sign up to our global AKU

the importance of

This eight-minute video includes interviews with health care providers who use disease

Eric Rice of

What impact does Get With The Guidelines have on hospitals and